Oakley’s Outings with Share a Star charity launch as Strood school girls help brother

Strood school girls help brother Oakley Orange, who survived Stevens-Johnson syndrome launch Oakley’s Outings charity with Share a Star

Sisters Tilly and Maisie Orange have cut their long locks to help their brother launch a charity for sick children.

Oakley Orange was given just a 65% chance of survival when he was diagnosed with Stevens-Johnson syndrome last year. The condition, triggered by an allergic reaction to epilepsy medication, meant Oakley lost all his skin as well as his hair, toenails and finger nails. He spent weeks in intensive care, battling hypothermia and a lung infection.

Six months after being discharged from hospital, Oakley, eight, is now linking up with our charity to help other sick children having been made one of our Stars and meeting with Jessica.

His sisters Tilly, seven, and Maisie, 13, have kick-started the fundraising with a sponsored hair cut. The girls were given their stylish new looks at Lush hairdressers in Gravesend, under the watchful eye of Oakley and mum Lorraine.

Their hair will be sent to the Little Princess Trust, which makes wigs for children who have lost theirs through illness.

See the article online…..http://www.kentonline.co.uk/medway/news/girls-give-brother-oakley-a-23431/

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